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Results from Sue Ryder’s human rights training for staff working in end of life care

Author: Suzanne Stevenson
12 December 2017

This week Sue Ryder releases an evaluation report from the first six months of running a new ground breaking human rights training for staff working in end of life care.

Since its launch in March of this year the Sue Ryder ‘What Matters to Me’ training workshop raises awareness of human rights in healthcare and has delivered some outstanding results. 

A very high proportion of people now rate their knowledge of human rights and confidence to use it in the work place far higher since attending the course.

The evaluation report's findings show that:

•              98% of people rated their confidence higher in using human rights as a way to enable shared decision-making at end of life.

•              97% rated their confidence higher in using human rights to resolve conflicts between the needs of different service users.

•              98% rather their knowledge higher on the relationship between human rights and other legislation

•              94% said their knowledge of the Universal Declaration of Human Rights was a lot higher

Last year Sue Ryder worked with the British Institute of Human Rights (BIHR) to co-produce a Practitioners Guide entitled ‘A human rights approach to end of life care’, which was published in May 2016. The guide addresses some of the current challenges around ethical decision making at the end of a person’s life.

Sue Ryder strongly believes that front line nursing staff and other healthcare professionals will benefit from more support and knowledge to help embed a human rights approach to end of life care in practice. The charity launched a free training programme, following a  grant from the Burdett Trust for Nursing and continued support from BIHR.

The first ‘what matters to me’ training workshop was held on 30th March 2017 and up until 30 September of this year, 23 workshops have been delivered and more than 250 people have received training.

Jacqui Graves, Sue Ryder Human Rights Lead, said:“This new approach will equip many more front-line staff providing end of life care to improve the quality of life for more people with an end of life diagnosis, and to ensure that care is personalised and ethical and difficult decisions are balanced using a human rights as a legal framework to shape and support practice.

“The training programme aims to educate and empower the registered and non-registered nursing and social care workforce to feel more confident in embracing human rights as an integral component of end of life care. And six months on from the launch we are clearly getting some excellent results.”

The aim of the workshops is to improve knowledge and understanding of human rights and increase confidence to use it in practice. To measure this, each attendee was asked to give a self-assessment rating of their knowledge and confidence before the workshop.  After the training a mandatory questionnaire is sent out to measure any change in their knowledge and confidence of human rights.

The free training course is open to nurses and health professionals. 

To find out more please visit


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