Cookies on the ehospice website

We use cookies to ensure that we give you the best experience on our website. We also use cookies to ensure we show you advertising that is relevant to you. If you continue without changing your settings, we'll assume that you are happy to receive all cookies on the ehospice website. However, if you would like to, you can change your cookie settings at any time.

How palliative care helped a teenager regain her life

Author: Sipokazi Fokazi | IOL News
02 November 2017

Huyaam Samuels, 19, was only 13 years old when she started experiencing regular falls, chronic pain and partial dislocations in her joints including her knees, shoulders and ankles.

“My mother knew something was seriously wrong as I kept falling. My knees gave in and I consistently complained of pain. I was 13 when I had my first full knee dislocation. I was doing hurdles and suddenly I couldn’t make it over the last one as my right knee just gave out. All I remember was that I kept screaming due to agonising pain in my knee joint,” she recalled.

After visiting doctors and specialists, who initially saw nothing wrong with her, she was eventually diagnosed with a rare condition called Pseudo-achondroplasia and Hypermobility Syndrome - which is characterised by chronic pain.

People with this condition have laxity within joints and elasticity of the skin as well. While this is normally a genetic condition, in Samuel’s case it’s not genetic and every week she experiences flare-ups that result in chronic pain and suxluxation (dislocations) on her major joints.

Read more

This article was originally published on

Share article

Article tags

    See more articles in In the media

    Comments | 0 comments

    There are currently no comments. To be the first to make a comment...

    Add comment

    Denotes required field

    Your Name



    Recommended Jobs

    Recommended Events