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New film on coping with acute and chronic pain of Epidermolysis bullosa (EB)

19 June 2017

A newly released German film with English subtitles tells the story of a young boy and his family living and dealing with the pain caused by the rare skin condition, Epidermolysis bullosa (EB).

Regular and painful bandage changes are needed for children suffering from Epidermolysis bullosa (EB). A newly released film from the German Paediatric Pain Centre, "Living with Epidermolysis bullosa (EB) - dealing with pain during changing bandages" is now available. Filmed in Germany, the film has easy to follow English subtitles.

The film provides information on EB, a genetically caused skin disease, in which even slight abrasions or pressure lead to skin blisters on the epidermis resulting in painful wounds. Many children with EB suffer from acute and chronic pain which is exacerbated by the need to regularly change bandages to avoid infection. EB is caused by missing or dysfunctional connecting structures between the layers of the skin. Currently, there is no cure or specific treatment to alleviate the complications of EB. 

The film provides successful strategies to deal with pain during the process of changing the bandages. Families watching the film will learn how to support their child, how to reduce anxiety and stress-experiences and how to help prevent the development of a chronic pain disorder.

The film features a wonderfully positive family supporting a young boy suffering from severe EB. It show how his parents and his older sister distract and help him to deal with the inevitable pain and how they work to normalise and face the challenges of everyday life for a child suffering from EB. The film also highlights the importance of allowing the child to be an active participant in his own care, empowering him by allowing him to make certain decisions related to the timing and process of the treatment.

The target audience for this film is families, nurses, physicians and psychologists who care for a child with EB and you are encouraged to share the film within your own circles to increase viewership. 

You can also watch the film on the German Paediatric Pain Centre website at http://www.deutsches-kinderschmerzzentrum.de/en/about-us/videos/epidermolysis-bullosa-englisch/ 

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