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The iPDF - International Paediatric Palliative Care Discussion Forum now online

Author: Joyce Chee, APHN Executive
21 August 2015

The Paediatric Palliative Care special interest group of the Asia Pacific Hospice Palliative Care Network has launched its first paediatric palliative care initiative in the form of an online moderated forum to provide networking and support. It will be particularly helpful for people who may be working in isolation.

The Asia Pacific Hospice Palliative Care Network (APHN) launched its first paediatric palliative care initiative, the International Paediatric Palliative Care Discussion Forum, abbreviated as the iPDF, on 20 August 2015.

Conceptualised and implemented by the Paediatric Palliative Care Special Interest Group (PPC SIG) of the APHN, the iPDF will be a free resource platform for all paediatric palliative care workers to ask questions and participate in the latest discussions in children’s palliative care, anytime, anywhere online. 

How it all started

Many paediatric palliative care workers in the region are working in isolation. Many cannot travel overseas for training and education. They have no one to ask if they run into trouble. Recognising the need to provide a platform that provides reliable help, is readily accessible, free and easy to use, the PPC SIG decided to fill this gap and start an online resource.

More than just a forum

The iPDF aims to become an online community for practitioners from different disciplines who work in the field of children’s palliative care, to provide networking and mutual support.

In addition to being an interactive platform, the iPDF is moderated by a multidisciplinary panel of experts. Participants can be sure that their questions will be responded promptly by the relevant content specialists.

Everyone can certainly look forward to many fruitful discussions with equally passionate colleagues around the globe, which has not been possible, until now. 

Moderators include:

  • Ms Sara Fleming, clinical lead nurse practitioner at Women and Children's Hospital, Australia
  • Dr Justin Baker, chief, Division of Quality of Life and Palliative Care, St. Jude Children's Research Hospital, USA
  • Ms Janet Duncan, nursing director, Paediatric Advanced Care Team, Harvard Medical School Centre for Palliative Care, USA
  • Dr Jan Aldridge, consultant clinical psychologist in paediatric palliative care, Martin House Children's Hospice, UK
  • Dr Megan Doherty, PPC physician, Department of Paediatric Haematology and Oncology, Bangladesh
  • Father Richard Bauer, clinical social worker, deputy chairperson, African Palliative Care Association, Namibia
  • Dr Maria Susana Ciruzzi, lawyer, member of Ethics Committee, Hospital de Pediatria J P Garrghan, Argentina
  • Prof Danai Papadatou, professor of clinical psychology, Faculty of Nursing, University of Athens, Greece.

Building capacity in a virtual environment

In conjunction with ongoing discussions, additional articles will be released every few months. These articles will include interviews with our moderators, who will share their own perspectives on the latest news and debates. Summaries of the most talked about topics, most shared answers, and further discussion on interesting projects within iPDF will be sent to participants, to keep everyone up to date on the hottest issues in the field. 

Moving forward

The iPDF will continue to engage participants through activities built around this platform. We look forward to the iPDF becoming a resource for all paediatric palliative care workers, not just as a knowledge base but also a source of inspiration.

Join us!

Find out how to sign up for the forum at the APHN PPC site.

The iPDF is hosted on the Google platform. If you have a registered Google account, you may join the forum directly.

The iPDF is an initiative of the Asia Pacific Hospice Palliative Care Network. If you will like to help contribute to the initiative or other activities in the APHN, please feel free to contact Joyce at aphn@aphn.org or +65 6235 5166.

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